Our inter-institute working group on Participative Research

Our GT3M working group (Rare Diseases, Mutation, Mediterranean)

In response to new societal challenges and to promote interdisciplinary research, in 2022, the MarMaRa and SoMuM institutes launched an inter-institute collaboration by creating a  healthcare working group.

This initiative aims to develop actions in new or under-represented fields in the institutes’ areas of research: history of rare diseases, familial anthropology and recessive diseases, data collection regulations and ethics, healthcare anthropology, health crises and management of public policies, relations between patient/doctor/health, medical care in the community, inbreeding, relationship type and structure, religions, social practices, cultural practices and integration of technologies in these practices, migrations, etc.

Within this context, MarMaRa and SoMuM offer researchers, teacher-researchers, post-doctoral students and PhD students of their scopes to participate in an interdisciplinary working group. Its objective is to pool the skills and the fields of expertises of individuals to respond to the challenges associated with rare diseases in the Mediterranean region. For MarMaRa, this involves strengthening the human and societal dimension, and for SoMuM, it involves linking healthcare questions with questions regarding societal transformations (transition, mutation, crisis) in a Mediterranean space connected to Africa, the Middle East and Europe.

 

Note: the SoMuM institute is no longer an Aix Marseille Université interdisciplinary institute.

Contacts

Our CIVIS working group

To strengthen and develop its European collaborations, in Autumn 2022, the Institute created a working group with researchers from the European CIVIS alliance who work on rare diseases. This group comprises members from the universities of Glasgow, Lausanne, Salzburg, Bucharest, La Sapienza and Madrid. The aim is to share our expertises, facilitate collaborative European and international research and organise common training actions such as a summer school, scheduled for 2024-2025.

Partner universities: University of Bucharest (RO), University of Salzburg (AT)

Phase I: virtual, on-line and independent work from 5 March 2025 - 30 April 2025

Phase II: face-to-face, France, Luminy campus from 23 to 27 June 2025